13 Response to Cai Chunzhu , why should I push autism Lele to the front desk
Lele in the car
0 The youngest son Lele was diagnosed with severe autism at the age of 2, I fell into gloomy depression for a long time. The pain was like a heavy punch hitting my heart. I heard the sound of shattering, but I couldn't say it.
When I was just diagnosed, my grandfather passed away. On the night when I was keeping my grandfather all night, I got drunk with a friend after drinking two glasses of wine. Then I hugged my friend tightly and cried: "Brother, my youngest son has been diagnosed with severe autism. I may not be able to take care of himself for the rest of my life, and the kind that cannot be cured!"
Another time I cried, on April 2, 2018, on the day of Autism, I took Lele back to my hometown alone. While driving, I listened to the radio call for care for the children from the stars, and burst into tears unconsciously.
Men don’t cry easily. These are the two times that Lele has been crying and painful for more than 4 years since she was diagnosed. Sometimes I think that if I can be as anxious and uncomfortable as a woman, I can cry loudly, and maybe the next day, I will be able to see the sunshine.
I had thought of sitting down and writing and complaining about my depression on the paper, so I picked up my pen and wrote the title "Why is me?" at the beginning, and then I couldn't continue writing.
For a long time, the comfort and relief of relatives, friends, and colleagues will not have any effect. Those listening to heartwarming words will have no effect on the joys that are severely autistic? How can it be of little effect to the maintenance intervention that cannot be separated from people and all kinds of troubles and difficulties? They have never experienced it personally, so how can they understand the pain of the most painful and difficult love?
For a while, my wife, my parents and parents-in-law, and even the kindergarten teacher Chen who helped to intervene for a year, dreamed that Lele suddenly spoke, speaking so clearly and cutely. After waking up, he only left a sigh and sadness.
It took me too long to face such a Lele even as parents, my wife and I fully accept it from the bottom of our hearts.
Yes, he has a first-level language disability and an first-level intellectual disability. He is severely typical autism. If he is not careful, he will cause trouble for his family, neighbors, community, and passers-by. But until now, we are embarrassed to say "Sorry, this child is autistic" when he looks at the questioning eyes of neighbors and passers-by.
seems to be autism, it is a shameful word like a thief.
Not long ago, Professor Yan Feng of Chinese of Fudan University in Shanghai, only after his son was diagnosed with autism for the first time due to the emergency reasons of the epidemic. As a parent who is a child, I can deeply understand the pain of not being willing to speak and the many considerations of not being willing to make it public.
What drove me to completely change this hidden and evasive mentality was reading Cai Chunzhu's "A Letter to My Son" at the beginning of the year and after reading his book "Dad Loves Xihe".
Cai Chunzhu loves Xihe
I am very grateful to Cai Chunzhu, the "father of autism" - I am a humorous fellow villager, his delicate words and mental path. I tell me that if I accept my son Lele, I have to accept his autism at the same time. I tell me that in the face of God's ruthless jokes, autism can also be a humorous person. I tell my son that since he is a fool, he must admit that he is a fool, and just be a happy fool father.
As a parent, I hope that the community, institutions, schools and society will give more care to the children from the stars, while not daring to admit that there is a child at home. Isn’t it a kind of hiding, escaping and logical contradiction? Lele is over 7 years old. Just a passerby can tell that this child is abnormal. What is the use of hiding and escaping? Facing the approaching hunter, turkey buried his head in the sand, will there be no danger of being caught? Can children have autism and deceive themselves?
Since I want to fight autism and want to shout back the soul of Lele who is floating on which planet Lele is floating on, have I shouted loudly to everyone and the world? Did I say my anxious thoughts out loud?
"If you know where to go, the whole world will make way for you"! According to the law of attraction, as long as we always bless our thoughts, speak out and write them down, and take action with all our strength, our wish will be realized.
I finally decided to confess Lele's autistic identity and decided to take Lele's rough mental journey from suspected to diagnosis to intervention for more than 4 years, sorting it out and writing it out and sharing it online. As a baby Lele who suffered severe autism trauma, I understand more deeply that if Lele was suspected and diagnosed, if my wife and family, I had a more understanding of autism and accepted the children more, the family would definitely be less in chaos, and the sadness in our hearts would definitely not be so strong and difficult to resolve, and our family life and Lele's intervention would definitely avoid many detours.
So I understand that narrating stories and sharing knowledge and understanding, and being able to touch and inspire others, the story is valuable and is also a merit of Lele to society.
Zhou Guoping said: "The limit of grief is to cry and laugh, and face the most tragic sufferings of life, so that people become demigods."
As Lele's father, of course I am not a demigod, maybe a half-silly and half-nerdy, but this is no longer important.
When I really calmed down and accepted it, I realized that when I narrated the sufferings and sorrows I experienced, it was as dull as telling other people’s stories. Where is
? There are so many unresolvable sorrows in the world. With joy, my world slowly fades away the hustle and bustle of glamour, and I have a deeper thinking and understanding of life and life.
When I was a child, I kept asking myself, what is the meaning of life ? Now, companionship and autism intervention in Lele are not only an unsolved puzzle of world medical science, but also a new major mission and topic in your life.
, what is the meaning of living?
