Yang Yaxue was admitted to the hospital a few days after she was born, and her parents had no way to accompany her. As a mother, Zhao Dongqiong did her best to heal her daughter's illness. However, things backfired. When Xiao Yaxue was just 11 months old, the doctor told her: "We have done our best, you can think of another way."
The picture shows Yang Yaxue
daughter is Mother's angel, Zhao Dongqiong's heart was empty when she heard that her daughter had no hope. She felt that the sky was spinning, the six gods had no master, the sun was shining brightly in the corridor of the hospital, the whole world was so bright and beautiful, why couldn't she raise her little daughter? Zhao Dongqiong trembling hands took her daughter from the doctor's arms, even though Xiao Yaxue was too weak to even lift her head, she laughed at Zhao Dongqiong after not seeing her mother for more than half a month. Seeing her daughter's smiling face, Zhao Dongqiong couldn't help it anymore, she bowed her head against her daughter's face and cried bitterly.
The picture shows Zhao Dongqiong and his daughter Yaxue
Zhao Dongqiong is from Zaolin Town, Bazhong City, Sichuan Province. In 2017, she met her 5-year-old colleague Yang Chao while working. March 28, 2019 is Zhao Dongqiong's birthday. Just as Yang Chao gave her a happy birthday, she found out that she was pregnant. This is really the best birthday gift God has bestowed on her, and they are extremely happy.
Zhao Dongqiong had a big reaction during pregnancy, and her husband told her to quit her job and raise her baby at home. When a pregnancy check is needed, Yang Chao asks for leave to accompany his wife.
The picture shows Zhao Dongqiong and her daughter
On November 1, 2019, their daughter quack fell to the ground. After Zhao Dongqiong gave birth, she opened her eyes and saw her daughter's pink face for the first time. Out of the greatest motherhood. It snowed in Bazhong area that day, and Zhao Dongqiong and her husband intimately named their daughter Xuebao. When the child was born, all indicators were normal. After a few days in the hospital, he was discharged and returned home.
The picture shows Xuebao
Unexpectedly the next night after returning home,Little Xuebao kept crying. Zhao Dongqiong and her husband hurriedly took their daughter to the local hospital for examination, which showed that the child had a high jaundice index. At 12 o'clock in the morning, Xuebao went through the hospitalization procedures. The hospital did not allow parents to accompany him, so they opened a hotel near the hospital and stayed in and waited for the results. As a new mother, Zhao Dongqiong was worried about her child and couldn't sleep. She held her husband and cried all night.
The picture shows Xuebao
The next morning, the doctor called and said that the child was better, but he still did not allow visits and escorts. The mother-in-law was worried that her daughter-in-law had just given birth to her child, and she suffered from the wind chill during her confinement period. She called her son to take her home. After returning home, seeing her daughter's milk bottle and small clothes, and thinking that her daughter had left him at such a young age, and suffered a crime in the hospital alone, Zhao Dongqiong was so distressed that she insisted on going to the hospital to see the baby. She said: "I just didn't allow her to accompany. I looked at her through the door. She was not alone anymore." The old man was afraid of catching a cold and confinement, and stopped her from going to the hospital.
The picture shows Zhao Dongqiong holding Xuebao's little hand.
On the third day, the hospital called to say that the child was healed and asked the family to pick it up. Zhao Dongqiong rushed to the hospital immediately. Seeing her daughter, she rushed forward and hugged her in her arms. So little daughter was alone in the hospital suffering from loneliness and illness, so pitiful, so distressed and worried, Zhao Dongqiong's tears involuntarily fell on the snow Bao's swaddling.
After returning home, Zhao Dongqiong carefully took care of her daughter and carefully fed her to grow up day by day. More than 90% of her energy was spent on Xue Bao. When Xue Bao is well, her heart is full of happiness and sweetness. Xuebao cried and made trouble. She was terrified and restless, for fear of her daughter's problems. When she was 3 months old, Xuebao, who was loved by her mother in her mouth, was still sick and suffering from pneumonia. After a week of treatment, he recovered, but his family found that Xuebao could not lift his head.
The picture shows Xuebao
At this time, the Yang Chao family came to Shanghai to work. At first, everyone in the family felt that it was the girl's low strength. But when they were 5 months old, Xuebao still couldn't hold his head, and they realized something was wrong.So Yang Chao and his wife took their children to Fudan Children's Hospital for an examination, and left the Department of Neurology. At first, the doctor said that the child was stunted, and then the examination said that it might be SMA (spinal muscular atrophy). In order to confirm the diagnosis, the child had an electromyography, and the result soon came out, Xuebao had SMA.
The picture shows Xuebao
This is a rare disease. After hearing the results, Zhao Dongqiong could not say anything at all, and I don't understand why the child got this disease. She looked down at her daughter, and Xue Bao kept looking at her mother. She felt a burst of unspeakable heartache. After returning home, Zhao Dongqiong did not dare to cry in front of her parents. She slept at night and cried secretly with her head under the covers.
The only specific medicine available for this disease is Noxinasheng Sodium Injection, which can cost 550,000 yuan per injection. Zhao Dongqiong and his wife couldn't afford that much money, so the doctor advised them to do rehabilitation training for their children. Xuebao cried violently every time during the rehabilitation training, and the child felt very uncomfortable and recognized his birth. The rehabilitation teacher said that he can go to the hospital once every three months and do it at home usually. But when nursing at home, you must not let your child catch a cold. If Xuebao catches a fever, it is easy to get pneumonia.
The picture shows Xuebao doing rehabilitation at home.
When Xuebao is 7 months old, Xuebao will call her parents, but she cannot stand, step, or even climb. Zhao Dongqiong thought: If it is not good for this disease, my child can also crawl. Seeing other people's children running and jumping, but Xuebao could only hold her, she was worried and spent every day in torment.
The picture shows Zhao Dongqiong and Xuebao
Because Xuebao's treatment costs are relatively high, in order to earn more money to treat his daughter, Yang Chao went to work on the construction site. At the beginning, it was okay, the wages on the construction site were relatively high. But before long, Yang Chao cut his arm tendon while carrying the glass, and he went home to recover after being in the hospital for more than a month. The family's finances are cut off, and they can only rely on their parents for support.
On October 2, 2020, Xuebao became ill. Zhao Dongqiong and her husband hurriedly took her to the Nanqiao Central Hospital in Fengxian District. The doctor looked at it and said it was severe pneumonia.It is recommended that they be hospitalized immediately. After the hospitalization, the child's condition became more and more serious, and heart failure occurred. The doctor asked them to transfer to the hospital and told them that the transfer process was also very dangerous, and the patient's parents were required to make a decision. Xuebao was soon transferred to Fudan Pediatrics. After more than ten minutes' journey, Xuebao was immediately taken to the rescue room. The doctor told the parents to go in and talk, saying that Xuebao had severe pneumonia and heart failure, and he had to go to the intensive care unit and could not visit, and that he might have to be intubated later. All the possibilities were told to Zhao Dongqiong, and every possibility the doctor said was so cruel and terrifying, which made it difficult for Zhao Dongqiong to accept.
The picture shows Xuebao
At 3 pm that day, Xuebao entered the intensive care unit, Zhao Dongqiong and her husband were waiting outside. The doctor took a lot of things for them to sign. Zhao Dongqiong's heart trembled, and her hand was so shaking that she couldn't hold the pen. She didn't want her husband to sign. Every thin piece of paper was related to her daughter's life, and she thought about all the materials related to her daughter. Checking it personally, as if she had passed the check, her daughter can add a layer of safety.
Waited until 7:30 in the evening, the doctor did not tell the child about the situation, let them go home. When I got home, my parents asked: What should I do if Xuebao can't keep going? Her husband did not speak, nor did Zhao Dongqiong. She hadn’t eaten or drank water for a day. After experiencing a day when Xuebao’s life was hanging by a thread, she had no strength and no mood to face their problems...
The picture shows Xuebao
morning 3 At this point, the doctor called and said Xuebao was about to intubate, and it couldn't support it noninvasively. Zhao Dongqiong was on the phone before going to bed, but she was afraid that the phone would ring in the middle of the night. Calling at unusual times is definitely not good news. She is afraid of bad news. The intubation heralded her daughter’s condition worsening and her death was approaching step by step.
They go to the entrance of the intensive care unit every day, every day, even though they never see their daughter. "Only at the door, I can feel Xuebao, and I can feel that the child is very close to me." Zhao Dongqiong said. In the beginning, every day was bad news. In the early stage of the child's illness, the family didn't say anything. Later, someone began to persuade Zhao Dongqiong to give up with the couple, saying that the child would suffer even this way, and the money would not be cured. In the end, there was no money.
The picture shows Zhao Dongqiong and Xuebao
Zhao Dongqiong said: "I face the bad news of the hospital every day,I really fell apart during that time, thinking about any possibility. Because of my persistence, Xuebao may have felt that her condition started to get better every day. I once thought that if Xue Bao was gone, I would go to accompany her and die, because I couldn't face a world without Xue Bao. "
Due to Xuebao's illness and admitted to the ICU, Yang Chao's second operation on his arm was delayed. Without a second operation, this arm may not be able to use strength in the future, and it will be completely disabled.
It was the hardest day for Zhao Dongqiong's family. Later, the doctor said that Xuebao's condition improved and he could try to take off the tube. Zhao Dongqiong and her husband agreed and said to give it a try, but they were very worried about whether Xuebao could succeed in getting out of the tube. If it is unsuccessful, it indicates the coming of death. At 8 o'clock in the morning the next day after being taken off the tube, the doctor called Zhao Dongqiong and said that Xuebao could not support non-invasively and asked them to talk to the hospital.
The picture is Xuebao_ p1p
Such a small child was given a critical illness notice by the doctor. "We have done our best, you can think of other ways. "The doctor said. At that time, Zhao Dongqiong couldn't hold back her tears anymore, and her mentality collapsed instantly. After her daughter was born, half of her time was spent in the hospital. As a mother, she regretted that she didn't have the short life course to accompany her child throughout. I felt helpless and felt the pain deep in my soul. My husband went to complete the discharge procedures, and Zhao Dongqiong had been sitting in the hospital corridor waiting. She didn't believe it would be the result.
Received Xuebao at 3 pm, Xuebao watched At first glance at Zhao Dongqiong, she actually laughed. "The doctor asked me to hold her, and I handed the bag to her father. When she saw me moving, Xue Bao cried. She seemed to be worried that I would leave her behind. . The moment I hugged her, I felt that my baby girl was thinner, not as heavy as before. "Zhao Dongqiong said.
The picture shows Xuebao
Yang Chao was crying all the way, and the child was smiling at them all the way. At that time, Zhao Dongqiong felt so sad... when he got home, Yang Chao went to buy They still want to try the oxygen concentrator, and can't bear to give up. In their hearts, they stubbornly believe that Xuebao will not leave like this.
Miraculously, after returning home,Xuebao actually got better day by day. Seeing her getting better and better, Zhao Dongqiong saw hope. Slowly Xuebao can get out of control, as before. Xuebao persevered, and with her perseverance, she overcame the disease and the difficulties. The home has also successively prepared machinery and equipment, but because there is no financial source, the equipment is leased. They spent all their savings and borrowed all their relatives and friends, and now no one wants to lend them anymore.
The picture shows Xuebao
Now, they have returned to their hometown in Sichuan, have registered for Xuebao, and bought medical insurance. Now Xuebao is in good condition, but SMA is still bothering her. Only those special medicines worth hundreds of thousands of dollars per injection can alleviate the damage caused by the illness. But in the face of such a high cost, Zhao Dongqiong only sighed.
If you want to help Xuebao, you can long press the identification QR code to view the project details and make a donation. If you can’t recognize it, you can save the QR code to your phone’s album, open it and scan, and select the QR code from the album to scan and recognize. The project was initiated by the China Social Welfare Foundation's 919 Critical Illness Relief Project, fundraising was initiated on the Internet fundraising information platform "Water Drop Charity" designated by the Ministry of Civil Affairs, and responsible for project review, execution and information feedback. The final interpretation of this project belongs to China Social Welfare Foundation. Supervision telephone: 4009-010-919.
"Photosensitive Project" serves as a bridge for non-profit photographers, charity organizations, and fundraising platforms, publishing pictures and stories about families in distress, and helping to raise funds. The plan is a picture charity project jointly initiated by 今日头条 in cooperation with the China Photographers Association and China Children’s Charity Relief Foundation, China Population Welfare Foundation, China Social Welfare Foundation and other charitable organizations with public fundraising qualifications. If you have difficulty, you can privately write the official headline number of the "Photosensitive Project".
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