In the third floor in a hospital in Shanghai, in the corner of the operating room aisle, Li Xin was lying on the ground with a quilt wrapped in a quilt, sleeping. In ICU, her eldest daughter Sun Xiaotong had just had a craniotomy surgery and removed the tumor in the left brain. The condition was not very good. Li Xin was unwilling to rent a house outside, so she sneaked into the hospital and went to sleep on the ground. "On the one hand, you can arrive at any time for the child to have situation, but on the other hand, the child's expenses are short, so you can only save a little bit." The picture shows Li Xin accompanying her daughter in a loving family.
The picture shows Tongtong.
1. Living to 30 years old, he can't eat enough
Li Xin's daughter Sun Xiaotong is 3 years old this year. She was unfortunately diagnosed with hairy myxophagocytoma last year. When the tumor in the brain was found, it was the size of a walnut, which pressed the child's optic nerve and his vision gradually blurred. Li Xin was 7 months pregnant at that time. She took Tongtong to Guangzhou Hospital for a month and had no results. When she was transferred to Shanghai Hospital, the child's eyes were no longer visible. The doctor immediately decided to perform tumor resection on the child. Since the right side was affected by the nerve area, he could only remove the left brain tumor for the time being.
Tongtong's treatment costs in Shanghai are high. Li Xin and her husband took out the savings they had worked hard for ten years before undergoing surgery on the child. Tongtong was sent to the ICU as soon as she left the operating table. Li Xin couldn't sleep every night. Shanghai's food, clothing, housing and transportation expenses were huge. Tongtong's spending on the ICU increased day by day. Li Xin had to sneak into the hospital with her big belly and slept on the hospital floor for a few nights. Unexpectedly, it was severely cold in winter. After a few days, Li Xin suddenly developed a low fever of and almost had an abortion.
Li Xin was sent to the ward for three days and spent three thousand. She knew that she could not afford to live, so she quickly left the hospital. Her husband felt sorry for her and rented a house for her next to the hospital. It was 1300 a day. During the Spring Festival, Li Xin took the train back to her hometown and gave birth to her youngest daughter. But Tongtong's illness is still long. The craniotomy affected Tongtong's nerves. When Li Xin returned to Shanghai in June, she found that the child not only had eyes invisible, but his body began to be uncontrollable. His hands were always claw-shaped, and he would hit people hard. He also limped when walking, as if he had mental problems. Li Xin felt heartbroken when she saw her child become like this. The picture shows Li Xin and her daughter Tongtong.
Tongtong's condition was also getting better and worse. Once, she suddenly had a high fever of 40 degrees in a rental house and her whole body was twitching. Li Xin was so scared that she called 120 and sent the child to rescue her, but she didn't close her eyes for three days. Tongtong spent more than 300,000 yuan on treatment this year and owed 150,000 yuan in foreign debt. Now she has to have chemotherapy, blood transfusions, and rehabilitation classes every month. The high treatment costs make Li Xin breathless, and accommodation and meal expenses have become the last straw that weighs on her. The picture shows a crying Tongtong.
Hospital learned about the situation of Tongtong family and knew that they were in a difficult situation, so it recommended to them the Fudan Pediatrics Affiliated Hospital Xiaoxingxin Home, which is a loving home that provides free accommodation for families with children in difficult situations in other places. Xiaojia also connects with the restaurant next to it to create a loving kitchen, providing free ingredient processing services and discounted meals. The picture shows Li Xin taking care of her daughter.
Li Xin was overjoyed when she found out. She has been traveling alone in Shanghai. She often has nowhere to live and cannot fill her stomach. She always wants to save her little money for her children to treat her. She has not finished her confinement after giving birth and has not yet had her confinement, which has caused her body to be often sore and has malnutrition. After she moved into the small house, she received the distributed love meal coupon and exchanged it for a sumptuous lunch box. It was the first time she felt like she had a full meal in Shanghai. "Sometimes I laugh at myself. I didn't expect that I could not even have enough food when I lived to be 30 years old." The picture shows Tongtong.
Li Xin and Tongtong felt the infinite warmth of Shanghai at their small home. "To be honest, I am really grateful to Xiao Xingxin Home for the place to live, otherwise I would really want to stay for my child to treat the doctor." Li Xin said with tears in her eyes. The picture shows Li Xin crying when talking about her daughter.
2. Leqi, who wants to grow taller,
In the corridor of Xiaoxingxin's house, Li Xia was pushing her 10-year-old daughter Leqi walking in a wheelchair. She found the door sign corresponding to the room card, but was stuck at the threshold. The administrator of the small family next to him came to help and successfully carried Leqi into the room with Li Xia. After closing the door, Leqi sat quietly on the bed, covered with bedding. Leqi has short hair and glasses, but her head and limbs are very disproportionate. She is 9 years old this year and looks like a 40-year-old, but her limbs are as short as a child of two or three years old.
It turns out that Leqi, who comes from a poor countryside in Anhui, has been suffering from cartilage incomplete development. In order to allow the limbs to grow, she started to take adrenaline shortly after she was born. Fortunately, it was effective, Leqi's legs and arms began to grow rapidly. However, when Leqi was 5 and a half years old, a relative accidentally fell down while hugging her and kowtowed to her head, but did not tell Li Xia in time. After two days, Leqi kept crying and saying a headache. Only then did Li Xia realize something was wrong and took the child to the hospital for examination and found cerebral congestion. The picture shows Leqi.
"Fortunately you came early. If you came late, you would not be able to rescue you." Li Xia still felt scared when she remembered the doctor's words. In order to treat cerebral congestion, Leqi had to stop taking adrenaline. In the next three and a half years, Leqi's limbs began to stop developing. More than a year later, Leqi's head has grown big. When Li Xia took Leqi to the hospital for examination and wanted to get re-adrenal hormones, the doctor told her that if the child wants to treat it now, he must undergo limb extension surgery and take adrenal hormones. There were six surgeries in total, which cost more than 2 million. Li Xia was extremely desperate. How did she come from an ordinary rural family to spend 2 million?
Fortunately, the national policy was introduced in June this year, and a lot of fees were exempted. Li Xia saw hope, but she felt pressured and dared not treat it. In a place like Shanghai with high consumption, how can the mother and son support it? Just as she was hesitating, the doctor from Fudan Pediatrics told her that there was a free love family near the hospital where she could apply for residence, and a cooperative love kitchen, where she could purchase ingredients for free processing, which could solve the problem of food and accommodation. The picture shows Leqi.
Li Xia's brows unfolded instantly, and the hesitation in her heart swept away. She quickly contacted the hospital's social work department and applied to live in a loving little home. Finally, with the help of the hospital and Xiao Xingxin charity, Leqi successfully came to Shanghai to start treatment, and underwent the first thigh extension surgery in September. Leqi was very brave, with six extended nails embedded in her legs, but she stood up strongly without shouting that there was a pain. The picture shows Xiao Xingxin’s House.
After the operation, Le Qi and Li Xia lived in a warm and comfortable home. The little family was very close to the hospital, and she pushed the child to the room in less than ten minutes. I also received a love lunch coupon from the administrator and had clean and hygienic meals. Li Xia said gratefully: "I really have to thank Xiao Xingxin's Home for making me determined to come to Shanghai to treat my child and realize Leqi's wish to grow taller."
The picture shows Lu Qingfan and his daughter Linlin.
3. Linlin, who has never tasted sweet,
"Linlin started taking medicine since the fourth day of her birth. I have never given sweet things to her child, so she still doesn't know what delicious food tastes, only the bitter taste." Lu Qingfan said bitterly.
In Xiaoxingxin's house, Lu Qingfan was holding his daughter Linlin and playing on the bed. Linlin's face became fattened due to hormone drugs, her hair was thick, and she smiled like a little Maitreya Buddha . Linlin was born with a very high liver function. She was diagnosed with liver failure in the provincial hospital and was sent to the ICU for emergency treatment. She issued a critical illness notice . At that time, the child was only 48 days old. Lu Qingfan signed many critical illness notices in Guiyang. She was panicked and at a loss when she stood outside the ICU door. After Linlin was rescued, she was diagnosed with cholestasis , and after the operation, she went home to take medicine.However, after Linlin's condition often rebounded after returning home, she was hospitalized repeatedly. When the child's condition indicators were not good, the director asked them to go to the hospital in Shanghai for a check-up. Her husband still needs work to support the family, so Lu Qingfan had to take Linlin from his hometown Guizhou to Shanghai alone. From 8 months of treatment to 21 months now, medical insurance in other places cannot be reimbursed for at all costs. Linlin owed more than 100,000 yuan in less than two years of treatment. Her husband has been working in Shenzhen and earning money for his children to treat his illness. "We thought we had to treat the child." The picture shows Linlin.
The hormone medicine Linlin takes inhibits growth and starts taking medicine from the fourth day of birth. "I didn't give my child something sweet, so she didn't know what delicious food tasted, or what sweet tasted. What the child knew was bitter." Lu Qingfan hugged Linlin and said with heartache.
The hospital knew that Linlin was in a difficult situation, so she introduced them to the Love Family and the associated Love Kitchen. Lu Qingfan was very happy when he learned about it. September, she took Linlin to live in a warm little home and slept in the first stable sleep in half a year. There is a vegetable market more than 200 meters away from Xiaojia. She goes to the vegetable market every morning to buy ingredients and asks the chef of the Love Kitchen to help make lighter complementary food for Linlin to drink. "I really thank Xiao Xingxin Home for providing this residence for our mother and son, and also allowing the children to eat clean, hygienic and warm food." Lu Qingfan said gratefully. The picture shows Lu Qingfan taking care of his daughter.
Hydraulic Hospital Affiliated to Fudan University ·Xiaoxingxin Home started to be put into operation on May 28 this year. As of the end of September, it has accompanied 107 families in different places to seek medical treatment for 897 days. Here, the small family witnessed countless joys and healed tears and sadness in the middle of the night. The small family hopes to light up the bright lights for more families in different places in difficult situations in the future and accompany them to move forward in the wind and rain. (Text | Pinellia Picture | Pinellia)
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