Every small group should not be given up. In my country, there are about 30,000 patients with spinal muscular atrophy. At the end of 2021, the National Medical Insurance Catalog drug negotiations bargained their "life-saving medicine" from 700,000 yuan per shot to 33,000 yuan, and included it in medical insurance. From no cure to sky-high-priced special medicines that cannot be used, to inclusion in medical insurance, more patients can see the dawn of hope.
Chen Guoyi is 11 years old this year and suffers from a very rare disease - spinal muscular atrophy. At a young age, he can only live in a wheelchair. When Chen Guoyi was diagnosed, there was no special medicine in the world.
For many years, Chen Guoyi has exercised with the help of his father every day and fought against the disease. When Chen Guoyi was about 2 years old, his family found that he was breathing very hard. After examination, Chen Guoyi's lung capacity was only 1/5 of that of children of the same age.
In 2019, the world's first drug to treat SMA (spinal muscular atrophy) - Nosinase Sodium Injection was launched in my country. However, the high price discouraged Chen Guoyi's family.
In early December 2021, the National Medical Insurance Administration announced a batch of new drugs for medical insurance, with Nosinaren sodium injection among them. This "sky-high drug" was subject to "soul bargaining", and the cost was reduced from nearly 700,000 yuan/injection to 33,000 yuan/injection. Chen Guoyi also became the first patient in Meizhou, Guangdong to inject this drug.
At present, thousands of patients with spinal muscular atrophy in the country have benefited from the inclusion of special drugs in the national medical insurance and are moving towards a happier tomorrow.
