Original article丨Good Mom
There is a famous saying in the Bible, "God is fair. He will open a window for you when he closes a door for you", Used on the girl Lannini, but it feels very unfair.
Lan Nini is a girl over 5 years old. I believe that many netizens have also seen her on the short video platform. The sky-defying beauty attracts people's attention, but the background music of her mother is very sad. , The reason is that Nini is sick.
"Silent Angel" Lan Ni Ni: The face value is against the sky and she cannot take care of herself, and her father said she will slowly become a vegetative
From the daily shared by her mother, we can see that Lan Ni Ni is beautiful with facial features. Like a little angel, she looks good in whatever clothes she wears, she also looks good with her hair loose, but Nini has never spoken, never called her father and mother , her favorite action is to look up at the sky, as if the blue sky is her best Whenever they are curious, netizens kindly call Nini the "silent angel"!
I believe many people are curious about "what happened to Lan Ni Ni", she suffered from a rare genetic disease called neurodegenerative disease with cerebral iron deposition type 6, which is also global There are few cases, and there is no clear treatment for the time being.
As early as when Lannini was 6 months old, her mother discovered the baby's abnormality. When she was only diagnosed with developmental delay, she was diagnosed with autism when she was 1 year old. Later, Lannini grew bigger and bigger, but she couldn't even speak basic words. She couldn't take care of herself at all, and she was eventually diagnosed with a genetic disease.
It would be great if Nini, who has an unbelievable appearance, can continue to be so beautiful, but dad said that the child may degenerate and become stiff.Eventually become a vegetable.
Looking at her cute and beautiful daughter, Lenny’s mother is also very distressed. Every day, she dresses up Nini beautifully, at least she looks like a normal child. She also said " If you can choose for you, I would rather you not have this look, as long as you are healthy!"
Many people think that genetic diseases come from their parents. If you can do pre-marital check-ups and pre-pregnancy check-ups, you can avoid them, but this This kind of recessive genetic disease is difficult to find even on physical examination.
Where does the genetic disease come from? Does everyone carry it? Don’t wait for the child to be born.
There are 46 chromosomes in the human body. There are 3 billion DNA base pairs on these 46 chromosomes. The inheritance of offspring may be complicated and uncertain. Therefore, once there are genetic defects in the genes of both parents, the offspring will have the probability of genetic diseases. Just like Lannini’s parents, even if they have a second child, there is a 25% chance that the child will get sick again.
No one can clearly know whether their genes are defective. It is recommended that every parent should pay attention to the following points for the health of the family and the future baby.
1. Know each other's family
genetic diseases are divided into many kinds, some are inherited from generation to generation, some are inherited from generation to generation , and some are not inherited. It is recommended to understand each other's family and family members before marrying And whether any of the close relatives of the three generations have suffered from a major disease, and whether the cause of the disease has been checked after the disease, so as to avoid passing it on to their own children.
2. Perform premarital physical examination
The premarital physical examination advocated by the country has been forgotten by many people.But in fact, this inspection is very important. It just happens to be able to initially screen for gene defects in the family. The general inspection location is the local maternal and child health care center. It may be different in different districts. You can consult relevant departments before marriage.
3. Avoid fertility at an advanced age
The best childbearing age for women is 25-33 years old. If they are over 35 years old, they are pregnant at an advanced age. Female cells conceived at an advanced age begin to age, and they are vulnerable to external viruses and radiation, and the fetus is also more dangerous.
All in all, the health and safety of children is the happiness of parents' life, and we must pay attention to genetic diseases and timely preventive inspections. I hope Lannini can recover. The biggest hope is that a miracle will happen, and the "silent angel" will become a "human angel"!
Ps: The pictures in this article are all from the Internet, infringement can be deleted.
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