Changsha Furong North Road, all the way north.
There is a very special pair of residents in a nursing home-65-year-old father Chen Ziyi and 35-year-old daughter Chen Siyu. They live in two adjacent rooms.
Chen Ziyi is afraid of mentioning the past. Whenever someone asks why his young daughter lives in a nursing home, this old father who "tears not easily" can't help crying.
Because, my daughter Chen Siyu suffers from hereditary cerebellar ataxia, which is commonly known as cerebellar atrophy . The disease currently has no cure and is hereditary.
In 2009, Chen Ziyi's wife had just passed away from the disease, and his daughter soon showed signs of illness. He knew that this disease was "incurable" and if nothing else happened, his daughter would suffer the same fate as her mother.
Suffering from no one to take care of him, Chen Ziyi could only live in a nursing home with his daughter, which cost 5,000 yuan a month, and his retirement salary was only about 4,000 yuan. With this money, he had to buy medicines for himself and his daughter, and use it for living.
"Look, my name is Zi Zi. Am I free?" Chen Zi Zi is helpless. Now, he and his daughter are trapped in this small nursing home, as if waiting for the judgment of fate.
Chen Ziyi's life is like a building, which experienced two "big earthquakes" and almost collapsed to nothing.
When their daughter was 4 years old, Chen Ziyi's wife suddenly became unsteady on her feet and became weak in her limbs. She went to the hospital for examination and was diagnosed with cerebellar atrophy. From then on, his wife was paralyzed in bed and needed care, and his daughter was still young and needed to be raised. He shouldered the burden of the family's life.
(Photo of Chen Siyu and his mother)
Chen Ziyi never thought about divorce. "At that time, I thought, even if she can't move, I will take care of her for the rest of her life."
At that time, he was a cadre of the Wenxing Town Government of Xiangyin County, Yueyang City. He worked and took care of his family at the same time. Ten years of persistence earned him the honorary title of the first moral model in Yueyang City, and he was also named one of the "Top Ten Men of the Era" in Hunan Province that year.
Before his wife became ill, Chen Ziyi had never heard of this disease. Later, he looked through the information and learned from a magazine that cerebellar atrophy is a genetic disease. Fortunately, it is "heterosexual inheritance" and his daughter has a very small chance of inheriting it.
In these difficult years, his daughter was obedient, well-behaved and had excellent grades, which was Chen Ziyi's greatest comfort and brightest hope.
(Before Chen Siyu became ill)
Chen Siyu has been "other people's children" since he was a child. She has always been among the best from elementary school to university. At the age of 17, she entered Guangxi Normal University and majored in history. After graduation, she was recommended to the school to continue her postgraduate studies in this major.
While in school, Chen Siyu had excellent grades, won first prize in the National English Competition, and also participated in archaeological work. She has good writing skills. She not only wrote narrations for school documentaries, but also published articles on "Dream of Red Mansions" in journals.
Chen Siyu knew that his family's income was not high, so he almost didn't ask Chen Ziyi for living expenses. He relied entirely on work-study and scholarships.
Before graduating from graduate school, Chen Siyu and her boyfriend agreed to take the PhD student exam at Fudan University together. They successfully passed the written exam, but unfortunately failed in the interview.
Chen Ziyi guessed that perhaps her daughter's condition affected her performance.
(Chen Siyu after illness)
When Chen Siyu rushed home after his wife passed away in 2009, Chen Ziyi discovered that his daughter would stumble or even fall when walking on the slope in front of the house. When keeping mourning in the mourning hall, the daughter also needs two people to support her before she can kneel down.
But both father and daughter kept silent about "cerebellar atrophy", and Chen Siyu continued to go back to school for graduate school.
Although he failed in the doctoral interview, Chen Siyu was admitted to the civil service and was admitted by the Xiangyin County Tourism Bureau. In the tourism bureau, she was fortunate enough to continue working in history. When the Xiangyin County Government held a commemoration ceremony for the 200th anniversary of the birth of Zuo Zongtang, Chen Siyu was responsible for translating relevant historical classics.
(Chen Ziyi is taking care of his daughter)
The good times did not last long, and Chen Siyu gradually became unable to walk or eat. After just five months of work, the boss came to Chen Ziyi and said: "Your daughter is smart and talented, but her health is critical now, so we should take her for treatment first."
The father and daughter moved to Changsha and Wuhan for medical treatment, and they could not get a good reply. Chen free decided to take his daughter to Beijing.
he knew that this disease was" not cured ", although he said that he would not hold anything in his mouth. Hope, but I hope that there will be a medical miracle; and "go to Beijing to see" is the wish of her daughter, and he wants to help his daughter realize this wish. Chen freely said.
arrived in Beijing. They hung up a 400 -yuan expert number and waited for a long time. As a result, when the doctor saw Chen Siyu's symptoms, she gave her "the ultimatum": "This disease cannot be treated. Chen Siyu cried on the spot.
"She felt that her life was over. "Chen free sigh.
(Chen Free and his daughter in Beijing)
passed the consent of her daughter. Chen Free said with her boyfriend on qq that the cerebral atrophy was complicated. ". Later, Chen freely learned that after graduating from Dr. Fudan University, this boy entered Chinese Academy of Sciences . Occasionally he would like to be a beautiful life that originally belonged to his daughter. In the past, taking care of his wife carefully to take care of his daughter. She brought her meals back to feed her.
often went to the toilet at night. Chen freely heard a noise and would get up to move her on the wheelchair, and then push to the toilet. When
was cured in Changsha, many students came to visit Chen Siyu to celebrate her birthday. .
is first of all exercise. .
Chen freely discovered that her daughter gradually began to say a complete sentence, and she could only jump one by one in 2020. Later, the father and daughter switched to typing with their mobile phones. Use your mobile phone to express some needs, the communication between the father and daughter is limited to this. In a large paragraph, in addition to blessings, he also hopes that he can pay attention to his body, check it early, and promise to be obedient. If possible in the future, he will return to his father ten hundred times. Finally, I wrote: "With my lifelong obsession, I sincerely pray that you can get up and happy, and your body is healthy every day. "
Chen Freedom put this passage into the collection clip, take it out from time to time.
(WeChat sent to his father)
in 2016, Chen freely retired and took care of his daughter at home. , I can only spend 4,000 yuan per month for nanny to take care of. At that time, his retirement salary was only more than 3,000 yuan, and he could only find relatives to borrow money everywhere. In helpless, Chen free brought his daughter into the nursing home. In diet, Chen freely wanted to visit his daughter, and he could only lame with the right half of the stroke.
(Chen Zizi and his daughter live in two adjacent rooms)
Recently, Chen Ziyi goes to his daughter's room less and less frequently.
Firstly, he himself suffered from many diseases, including hyperlipidemia and diabetes after a stroke. The doctor advised him to rest more. And every time he visits his daughter, the past memories are brought back and he can't help but feel depressed, "She should have been a knowledgeable and educated person, but now she is full of words but can't speak out. How painful it must be!"
The second reason is that he is afraid. Can't handle the relationship with the caregiver well. "If I always go there, I'm afraid they will think that I don't trust their care."
(Chen Ziyu injects himself with insulin )
Since last year, Chen Siyu's hand can no longer even touch the mobile phone. Father and daughter The two lost their last means of communication - Chen Siyu sat in front of the TV all day, his eyes dull.
Chen Ziyi can only support and care for his daughter in his own way. He knew that his daughter loved to eat delicious snacks, so he placed an order online, asked someone to help pick it up from the group purchase point, and then asked the nurse to make a separate portion.
Some time ago, his daughter's toilet broke, so he scraped together more than 300 yuan to buy a new one.
He knew that there was no cure for his daughter's disease, but he fantasized about a miracle. When he saw a "medicine" on TV that could "activate brain cells", he asked someone to take out the remaining money in his bank card to buy it. , hoping to alleviate her daughter’s condition.
When I was at home before, my daughter spent most of the time in a wheelchair, which was more comfortable. In the nursing home, for convenience, the nurse often puts the daughter on the toilet.
was afraid that her daughter would feel uncomfortable sitting for too long, but Chen Ziyi did not dare to complain in person.
He often sat at the door of his room, looking at the elderly people in the courtyard who were much older than himself, and felt even more sad.
(Chen Zizi sitting alone at the door of the room)
For 65-year-old Chen Ziyi, living in a nursing home at this age may not have been his life plan. His daughter, who was unable to take care of herself due to illness, was an unexpected blow.
html More than 20 years ago, Chen Ziyi once imagined a life after retirement, maybe traveling around, and if he had grandchildren, he would help his daughter take care of them.But these longings have become a dream.
Now he thinks that if one day his daughter cannot escape the same fate as his wife and walks in front of him, he will immediately move out of the nursing home and live the rest of his life.
However, as long as he still has breath, he will protect his daughter.
Source: Tencent Medical Dictionary
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