"Which man can html wash the sheets once every 12 days ? Or midnight ?"
, my roommate A Ze.
Actually, as soon as I moved here, I found something wrong with him -
In the summer of Shenzhen, it would be fine if he wears a long-sleeved mask at home,
You say he loves to be clean, his hair is sloppy, he looks like he hasn't been trimmed for more than half a year.
said he doesn't like to clean it. He sneaked into the bathroom to wash the bed sheets almost every two days, almost every night.
The most suspicious time was when I ran into him sneakily and turned into a remote alley after get off work, and finally disappeared in a "old and dilapidated" barber shop with nowhere and nowhere to look formal.
barber shops downstairs are not to go, so they come here from afar. Nothing tricky? He
who believes it!
"But in a roommate, how could you watch Aze go astray?"
I kicked open the door of the barber shop and scolded him loudly:
"No matter how vigorous the 'energy' is, you can't do things that will get into oranges!"
Seeing me, Aze seemed to be dead. He stammered, "I...I'm really here to cut my hair"
"Don't explain, I saw it all, you wash the bed sheets in the middle of the night because..."
"Because of this disease, my whole body is covered with 'bark'
Wake up every day, and the bed sheets are like snakes shedding their skin"
Aze rolled up his long sleeves, revealing his rough and "scraggy" arms.
red skin pits are connected together, and are piled up with hard and thick white scales . Touch with your hands, scraping your hands like you are touching "old tree bark".
"I pass by the mirror and I dislike myself."
But this disease not only looks unsightly,
But this disease not only looks unsightly,
ml1 "Itchy, I was so itchy that I couldn't sleep all night. When it was the most itchy, just wanted to dig out the meat with a knife to relieve itch ."
especially in the dry winter, Aze was like living in "torture" every day.
When walking, countless small cracks broke out while losing their skin. Especially for joints, the skin will bleed after it collapses.
When sleeping, the raised scales were like barbs growing on their bodies. Aze turned over gently, which was equivalent to pulling all of these barbs. I woke up the next day and fell into bed with snake skin , and there were blood stains all over .
In order not to let the roommate see it, Aze only dared to come out to wash the bed sheets in the middle of the night.
Destiny gave the "tattoo" and immortal "cancer"
"Dad, the body is so itchy..."
0 years ago, in an old tiled house in the countryside.
The next day before dawn, the family woke up Aze and set off for the hospital.There was only a "28-bar" bicycle at home. Aze was sitting on the bar, and Ze's mother sat in the back seat with boiled eggs and pancakes in her arms. Ze's father pedaled for more than 50 kilometers before he arrived at the hospital next door. At that time, Aze heard for the first time in his life that there was a disease called -
psoriasis
also known as "psoriasis".
There is Red papules or plaques covered with multiple layers of silvery white scales, is a typical manifestation of psoriasis.
This is a chronic and recurring immune system disease . It can be controlled, but cannot be cured. Many people have a lifetime of gain. The latest survey data showed that the incidence of psoriasis in China is around .47% . According to this, there are about million to 8 million psoriatic patients in China.
In order to cure the disease
"I have drunk pig galls water and wrapped it into a mummy in summer"
After returning home, Zema heard people say that drinking "pig bitter gallbladder" (pig bile) works. Later, for more than half a year, Aze had to kill a bowl of thick "pig bitter gallbladder" every day. In order to get "pig gall" for the child, Ze's mother asked every day which family in the village wanted to kill pigs. Every time, Aze pinched his nose, raised his head and drank the "pig bitter gallbladder" all over, and then he wanted to twist his facial features into a ball, then rushed into the kitchen, picked up the kettle and poured a lot of water. Despite this, the mouth was still very bitter.
Pig bitter gallbladder, source: Internet
Later, Aze tried various "local methods". One night, Ze's mother mashed the garlic and wrapped it on Aze's legs and fell asleep. The next day, Aze's legs were burned with big blisters, which made him cry heart-wrenchingly.
This disease will worsen when you have a cold and a fever, so he just cut his tonsils even after doing it.
After being tossed with "folk remedies", should the "bark" on Aze's body grow or grow, and itchy.
When he grew up, he suffered a lot of crimes in the hospital.
He tried twice before and after, and a piece of flesh on his stomach was cut off and then sewed on it. One is used for pathological biopsy and one is provided with specimens to the group for drug testing.
But the most tormenting thing is "package" .
Have up in the morning and shave your head first. Apply medicine to the whole body and scalp, then wrap it in plastic wrap to form a "mummy". You can't move it in the next 2 hours because plastic wrap and medicine will fall off once you move it. I can't sleep either, because I still have to get a drip. After that, I have to go to the medicinal bath and shine, and then come back to apply the medicine.
Psoriasis Patient Mutual Aid Network "package treatment" schematic diagram
A set of "combination punches", Ozawa's "bark" began to fade slowly, returning to the normal skin state.
But I’ve been happy for less than 2 months, and the “bark” has grown again.
"I once thought of jumping down from the 24th floor"
This disease will not kill people, but it makes people's life worse than death
In 2016, in order to go to a big city to see a doctor, Aze began to work in Beijing, Shanghai and Guangzhou.
Before joining the company, Aze must do something that he hasn't done for a long time,
hair cut.
Usually, it is difficult to find a barber shop that does not despise Aze. Because "bark" not only grew on his hands, feet, body and face, but also on his scalp. Once he went to cut his hair, and he was kicked out halfway through.
Later, he would rather have long hair that was unkempt than go to the barber shop. I really have to cut it, so I just chose the small shop that is remote and has a simple environment, as if it is about to be dumped at any time. "Stores with poor business may not despise people like us."
After joining the company, he moved into a dormitory of more than a dozen people.
At night, my colleague in the lower bunk suddenly felt something floating on his face. The next morning, my colleague lifted Aze's quilt in front of more than a dozen people, revealing the dander and small blood spots covered with the bed sheets.
"Do you have any unclean infectious diseases?"
Facing your roommate, A Ze's head was as low as a child who did the wrong thing, without saying a word or refuting.
That night, the boss paid him 20 days' wages and asked him to move away.
dormitory is on the 24th floor. After being kicked out of the door, Aze stared at the main road and saw it was amazing. "Sometimes I thought about it, it would be better to die of cancer."
The more I thought about it, the stronger the thought in my heart.
1 Report on the "China Psoriasis Disease Burden and Patient Quality of Life Research" released in the International Research on Medical Management of Peking University in 2018 pointed out:
- 9% patients feel mental stress
- 34% of patients with have suicide thoughts
- %% have committed suicide
favorite job is in a factory in Dongguan .
There, he can wear static that wraps his whole body tightly, revealing his eyes only.
It’s a pity that the factory collapsed after only two years of operation. "Otherwise, I might be working there for the rest of my life."
Thinking of this, the energy in my heart suddenly disappeared.
From the 24th floor, he found a cheap Internet cafe and stayed for 3 days.
In the next three years, Aze directly "showed it off".
"When you know you don't think well, just forget it."
Doctor's words made him collapse:
"My son is 9 years old, I have never hugged him to sleep"
June 2022, Longgang, Shenzhen.
A Ze, who has always paid attention to his body, still caught a cold. After coughing for 1 month, he started to have a fever.
When the fire broke, Aze's "bark" began to grow wildly again. But this time, it is obviously different.
"I have never been so serious in my life, and I was panicked at that time."
He has given up treatment for 3 years and has to go to the hospital again. At the South China Hospital affiliated to Shenzhen University, he received the title of Zou Xianbiao, director of the Dermatology Department.
Unlike the doctor I have met before, Zou Xianbiao is more like an old friend of his.
After seeing Aze, Zou Xianbiao's first thing was not to check, prescribe medicine, or prescribe treatment, but and talked to him about "home" .
That day, all the bitterness and grievances of Aze over the past 30 years broke out instantly.
" My son is 9 years old, and my father has never slept with him in the same bed"
"My mother's 60th birthday this year, and I'm going to miss it too"
"The best 30 years for a person, I missed it all"
"..."
"..." 2
He sat in the white dandruff on a stool and cried like a child for a long time, "We need a person to talk to this disease."
waited for Aze to calm down, and Zou Xianbiao told him good news:
In 2019, a psoriatic biological agent targeting IL-17 was launched in the market in China. In March 2021, the biological agent was included in the national medical insurance, with 80% reimbursement and 20% of the self-paid expenses.
This means that the "special medicine" that Aze has been looking forward to has arrived and can still get medical insurance. His income situation can be afforded even if he grits his teeth. After
, Aze insisted on receiving standardized treatment in the hospital's dermatology department.
months after taking the medicine, he finally became an ordinary person.
so ordinary that you can't find him in the crowd.
and this is exactly what he wants most.
Aze's current skin condition
"In order to wait for me to go back, my sister's engagement was postponed twice, and now I can finally go home."
Aze didn't know that the doctor he met "stands on his hands" at the beginning was because he was too familiar with psoriasis patients and too much of their suffering.
Zou Xianbiao was once the "old military doctor" of the General Hospital of the People's Liberation Army, and has treated tens of thousands of patients with skin diseases that seriously affect their lives, such as psoriasis, vitiligo and bullous diseases. In 2021, he came to the South China Hospital Affiliated to Shenzhen University from Beijing. The Dermatology and Venereology Department he led is currently the department with the largest number of patients in the hospital. Many old patients in Shenzhen traveled to Beijing to see him for treatment. After learning that he was in Shenzhen, they "chased him" back. He hopes that "keep the patients in Shenzhen in Shenzhen, whether they are mild or severe" .
Zou Xianbiao said that patients with psoriasis themselves are already in pain, but the most painful thing is to be discriminated against and dislike.
"To help this group, the first thing we need to do is to eliminate misunderstandings."
"Psoriasis" is different from other ringworms
it! No! pass! dye!
Although the occurrence and development of psoriasis may be related to bacterial or viral infections, psoriasis is not an infectious disease and does not have any infectiousness. will not be transmitted to others through shedding dandruff.
The cause of psoriasis is not yet clear. Scientific research believes that this disease is related to heredity, infection, environment, emotions, etc.:
- family genetic
- 0%0% has a family history. If one parent suffers from psoriasis , the incidence of psoriasis in children is about 6% . Both parents are in patients with psoriasis, and the incidence of psoriasis in children may reach 0% .
- Environment changes
- easily worsen in winter.
- infected
- bacterial or virus infection.
- bad emotions
- tension, anxious, and in a state of depression for a long time.
- Life habits
- Hometimes, staying up late, working, smoking, drinking, etc. for a long time.
-End-
"Disperse when useful"
Professional guidance:
Chief physician of the Department of Dermatology, Venereology, South China Affiliated Hospital of Shenzhen University Zou Xianbiao
