"Dongdong"CR" Story Column"
I hope that people in the world are free of illness, so why not put medicine on the shelf and produce dust.
dongdong "CR Story" column is a column for anti-cancer stories we have opened for our patients. Here, the protagonists of our anti-cancer story use courage and persistence to fight the hideous cancer disease.
They may just be an ordinary person who passes by each other in daily life, but in the face of the sudden surging disease, they burst out with unimaginable light and fight a beautiful annihilation battle with cancer. The original intention of setting up the column
is to use their stories to illuminate those patients shrouded in the haze of cancer. I hope that with their courage and experience in fighting the disease, more patients can get out of the quagmire of negative emotions.
We believe that these wonderful stories can become a banner, a faith, and a ray of hope in the dark world where illness and pain are raging. When we think of them, our patients will still burst into blood and burn their fighting spirit. This is the true anti-cancer spirit, and it is also the spiritual mark and inheritance that we firmly believe that we will eventually defeat cancer.
The story we are going to tell today is such a story about young people.
For nearly 8 years of fighting cancer, Dongyou "can't sleep in the middle of the night" has become a big star in the Dongyou cancer friend community. Share experience and answer questions. As long as he does not fall, the cancer friends will not be able to fight cancer together. He has become a banner in the hearts of many people, helping cancer friends rekindle their hopes for fighting cancer.
anti-cancer opinion leader, nasopharyngeal group owner, creative expert... In Dongdong community, Dongyou "can't sleep in the middle of the night" has many labels. But the most representative one is the recovered PD-1 inhibitor, a young man who is too "free and carefree".
is different from most cancer patients. At the age of 21, this is the age when "can't sleep in the middle of the night" and cancer unexpectedly encounters. Cancer comes to him inappropriately.
From early nasopharyngeal carcinoma , to recurrence of the disease and liver metastasis, to complete remission of the disease (that is, all lesions disappear), the teenager underwent a series of cancer treatment methods such as surgery, microwave ablation, chemotherapy, radiotherapy, PD-1 inhibitor immunotherapy , and other cancer treatment methods.
The difficult anti-cancer journey was passed by this chic young man to "fight monsters and pass the level" game, and he also completed the perfect level achievement. If you want to tell his secret, it may be the sentence he often says: "Being a smart cancer patient, treating diseases with your brain is more important than treating diseases with a money bag."
His anti-cancer story starts in 2015.
While the wind was blowing, a small nasal tumor
actually buried a time bomb for the future
Maybe it was too smooth. Life needs to be pressed to review it carefully. In Dongyou, who was quite proud of "can't sleep in the middle of the night", he was found to have early nasal hypodifferentiation squamous cell carcinoma .
Like all patients, cancer diagnosis is a feeling of "from heaven to hell". Until now, "I can't sleep in the middle of the night" clearly remembers the nearly substantial suffocation when I saw the diagnosis report for the first time. The two heavy words "cancer" pressed on my body, which is really unbearable.
Fortunately, fate left a back door for the young man. After a comprehensive examination, Dongyou's cancer condition, which was "can't sleep in the middle of the night", was discovered in time, and the disease stage was evaluated as early and mid-stage, which belongs to a relatively mild stage in cancer. Patients who undergo surgery at this stage and receive adjuvant treatment have a 5-year survival rate of more than 80% (i.e., the probability of clinical cure for is more than 80%).
so he was confused and "can't sleep in the middle of the night" and started his first stage of cancer treatment journey -
I heard that a well-known hospital in Changsha had done a good operation, so I cleaned up and went to perform a cancer lesion removal surgery. After the operation, I heard that a cancer hospital in Guangzhou had the highest level of nasopharyngeal cancer treatment, so I rushed to Guangzhou thousands of miles and confirmed a joint plan of 34 radiotherapy + 2 synchronous chemotherapy.
In fact, now when recalling this experience, it is still a little regretful that "can't sleep in the middle of the night": if the treatment plan can be optimized, and if you are younger and do two more induction chemotherapy, will the results be better?
Of course, this is all based on a series of stories that follow. At that time, I had "can't sleep in the middle of the night" and had completed postoperative auxiliary treatment as per the doctor's advice and was looking forward to the restart of my life.
The nightmare comes again
Why did this little probability event happen to me?
In March 2019, the shadow of cancer once again enveloped the head that could not sleep in the middle of the night. The most terrifying nightmare once again made a comeback:
The nasopharyngeal cancer that I thought had been completely eliminated actually relapsed! After imaging re-examination of CT and nuclear magnetic field, a 3.1cmx3.0cm lesion appeared in the liver of , which was "can't sleep in the middle of the night". For cancer patients, relapse often means a poor prognosis. A more severe and difficult challenge is coming. Has fate left a "back door" for this young man this time?
answer is no.
The next treatment process of "can't sleep in the middle of the night" can be said to be hitting walls one after another . With hope, he came to a cancer hospital in Guangzhou again and spent a lot of effort to get a certain director's outpatient account. He was expected to get the best solution, but he was poured cold water on the spot and said: "Go back and spend time with your family, you may not be able to last next year's May Day."
Then he consulted at a well-known hospital in Changsha, and the results were not satisfactory. In the end, due to the persistence of his family, he came to a cancer hospital in Guangzhou for surgery.
Without a systemic evaluation, he underwent a laparoscopic surgery in the liver. The surgery successfully removed the main lesions in his liver, but missed another nodule in the S7 segment of the liver. This nodule was not treated with ablation until July 2021.
3
My life is my fault!
Study hard, be a smart tumor patient
The consultation and surgery were not going smoothly, and as the situation was about to take a sharp turn, an important decision changed the life of "not sleeping in the middle of the night".
After the liver metastasis tumor is removed, the next treatment is crucial, and "not sleeping in the middle of the night" has also made sufficient preparations. However, the consultation at a cancer hospital in Guangzhou was still very unsuccessful, and even left a shadow on him:
During the consultation, the attending doctor formulated a follow-up treatment plan for him to return to his hometown for six more chemotherapy. When he actively communicated that he wanted to try PD-1 inhibitors (at that time, PD-1 inhibitors had not been approved for nasopharyngeal carcinoma indications), he was even harshly spoken by the doctor: "You are so powerful, please sit here and say, let me listen to the opinions of you, the patient with the Nobel Prize of !"
This time, he actively learned from his personality and made the most important decision in the treatment process: returns to Hunan to find a doctor who understands immunotherapy, and communicate with the combination of immunotherapy + chemotherapy.
Hard work pays off. After repeated communication and consultation, I finally found a doctor who understood immunotherapy and also supported him to adopt a combined immunotherapy + chemotherapy regimen.
Finally, with the recommendation of the doctor, the treatment plan for the PD-1 inhibitor teriplizumab + albumin paclitaxel + cisplatin was selected. The tug-of-war between
and tumors officially began from this moment.In May 2019, "I can't sleep in the middle of the night" officially started his combined treatment journey of chemotherapy + PD-1. As a pioneer of immunotherapy, the first domestic PD-1 inhibitor was not approved for the treatment of nasopharyngeal cancer patients in 2021.
The cancer path is tortuous, and the long path is blocked and long is the most true portrayal of the combined immune treatment process. With the use of two inhibitors of albumin paclitaxel + cisplatin + PD-1, "can't sleep in the middle of the night" has the greatest expectations for this "Ace" combination. But the result was contrary to expectations. This "Ace" combination progressed while using it, and a new liver lesion nodule appeared in the evaluation after two treatments.
The huge loss did not defeat this "smart cancer patient" who always insisted on self-learning. In July 2019, "Can't sleep in the middle of the night" replaced the treatment plan with a combination of oral chemotherapy drug Tegio combined with PD-1. The change in the
solution has brought completely different therapeutic effects, and this time the joint solution is effective! In June 2020, the combined treatment of Gio + PD-1 brought a huge surprise to "not sleeping in the middle of the night": after evaluation, his liver lesions had completely disappeared, and this magical combination solution helped him achieve complete relief of his condition!
However, there is an old saying: Good fortune depends on misfortune. This time the surprise didn't last long. In October 2020, due to the long-term use of chemotherapy drugs Tegio, I gradually felt that my physical condition was in poor condition. For the reason why the treatment was effective and had been completely relieved, he decisively stopped taking tegio and extended the use of PD-1 inhibitor. Treatment decisions such as
soon showed drawbacks: in December 2020, the original liver lesion of appeared again during the re-examination of the disease. Since has reversal again, solve it as usual! For this recurring "thorn" and "can't sleep in the middle of the night", he decided to take more proactive measures: in January 2021, he chose microwave ablation and successfully treated the recurrent liver lesion.
has been going on since January 2021 to the present. Even though "can't sleep in the middle of the night" has experienced so many reversals and repetitions, the problem has been solved with his hard work and decisive handling. The most important thing to be a "smart cancer patient" is to be able to handle the cancer problems you face better and more timely.
Nowadays, the "can't sleep in the middle of the night" has been completely relieved for nearly two years. , and I believe that the ultimate goal of clinical cure will be achieved soon. Of course, all this is due to his most critical treatment option. Next, we will continue to rush toward the road to final healing with "can't sleep in the middle of the night".
For cancer patients, "can't sleep in the middle of the night" has some of their own views on life and treatment in the interview, and we encouraged all the patients:
About cancer
I personally think cancer patients basically have to go through a process, from accepting reality to facing reality. But the most important thing is to set a goal for yourself, get along well with the tumor and live seriously, which is very important. After the tumor metastasis, I was really talking to myself and the society and the world. What is a good life and what is a real life? After the transfer, I think more and more clearly.
In my experience, cancer can make people understand what the true meaning of life is, what is true and what is false? This is also a great asset to me. I recommend that you read more when you calm down and copy sentences that you feel can relieve your mood. When you are in a bad mood, you will take a look repeatedly, which will also heal yourself. It would be better to read more books and listen less to things that are not conducive to your condition. The two books "Everyone's War" and "Rebirth Notes" in the picture are very recommended, and they teach me a lot of anti-cancer concepts. From time to time, when I feel bad, I will take out some of my reading notes and tell myself that the future will be promising.
On the road to anti-cancer, I have always believed that if actively treats, correctly treats, and does not over-treat , I can strive for the greatest effect for myself. As long as you fight to the last moment, you will be worthy of yourself. Everyone has different individual differences. As long as they feel that they live a wonderful life, they will no longer be afraid of death. As long as you are not afraid of death, your mentality to fight cancer will be better. Maybe good luck will come, right?
Regarding the cure of cancer
I can only say that I am lucky, I have several elements of successful anti-cancer. Time, energy, family companionship and care . Of course, I do have a certain amount of luck . But most importantly, I am constantly learning and understanding disease knowledge myself.
also wants to prove to everyone with personal actions that even if you are suffering from cancer, you can still live a wonderful life. From the beginning of chemotherapy and radiotherapy to the current targeted therapy and immunotherapy, I believe there will be more therapies in the future. Race with time, be friends with Tumor, and try to delay this disease into a chronic disease. Even if the length of life is no longer possible, we can still pursue the width of life!
Learning about anti-cancer knowledge
I was diagnosed with nasopharyngeal cancer at the age of 21, and had liver metastasis to an advanced patient at the age of 25. I was once sentenced by professors to not survive Labor Day in 2020, but now I have been CRing for more than a year.
I am not a miracle. There are many anti-cancer pioneers with better efficacy among my patients. Their common feature is that is familiar with the condition and is familiar with the treatment and has prepared plans for follow-up treatment.
Anti-cancer is a very difficult thing, but cancer is also afraid of people with ulterior motives. Even if you are not lucky, you can at least avoid traps on the road to fighting cancer and avoid mistreatment and overtreatment. Just like the chicken soup we often hear: "Just work hard and leave the rest to God's will." I think so myself. I always think that fighting cancer is to do my best to do my best! When you come to this world, you should work hard to survive, and live hard to survive for the concerns and beliefs in your heart no matter what.
I always think that "It is much better to be a smart patient than to be an obedient patient"! I often send a knowledge point to my patients. If you want to achieve a miracle of treatment, you must learn it yourself. Interested friends can keep their own treatment records. Patients who study on their own can not only reduce most of the unnecessary treatment costs, but also increase their treatment results. I have seen too many negative cases of patients and have always wanted to change the treatment concepts of patients. Although it is difficult, I have been persisting in doing it. I just hope that too many confused patients can find a place to stay together for warmth.
Regarding "being smart tumor patients"
How to be a smart patient, I think it can be divided into several parts. Talk about it from the aspects of just confirmation, consultation, treatment, and after treatment.
【1】Hundreds of confirmed
Remember not to seek medical treatment in a hurry! Remember, you must compare and compare. Find a professional, rigorous and reliable doctor who is willing to communicate with you and listen to your needs. The lesions must be evaluated to be 100% accurate and then treated. Evaluation is a very important step in the treatment of cancer. If the evaluation is not in place, start treatment, which is likely to lead to mistreatment and overtreatment.
【2】In consultation,
We need to be a smart patient ourselves. gives convenience to doctors is to give convenience to ourselves. It is very important to make a clear medical record for ourselves.
From left to right, the medical records range from simple and refined to detailed and complex
. I simply pasted the medical records I compiled myself. Basically, the doctors I met felt it was clear at a glance. I did three modes in total. There are simple and complicated things. When you are in consultation, you will look at the doctor's attitude and take out the corresponding medical records for him to see.Every time I give it to the doctor, they feel that the patients are taking care of themselves, and some even feel surprised. Treating a disease requires the work of doctors and patients. When the doctor sees the efforts you make, he will treat you more carefully. (ps: Dong friends can use Dong Dong smart medical record function, which is super convenient)
When you have an interview, you must record all your questions in your mobile phone in advance. Otherwise, the doctor will not give you much time when you go in. You can't ask or forget to ask what you want to know and it will be a waste of time. I have seen many patients running over to see a doctor in a panic, but they did not ask any constructive suggestions. The questions you want to ask are recorded in the mobile phone memo and asked clearly one by one.
The most important thing in anti-cancer is the details. Before preparing for consultation, you must inquire about the reliable doctors. I hang up a few more doctors' numbers at a time and compare them to find the doctor who is willing to communicate with and has some humanistic care. Many times, the "talk therapy" of the attending doctor is more useful than chemotherapy, and a doctor with humanistic care is very important.
【3】In treatment
Being a smart patient is far more important than being an obedient patient! What we want to do is to help our lives with our brains instead of our waist bags!
You must learn more. Only by constantly reducing the information difference between you and the doctor can you be less afraid of disease. You know what path you have to go in the future, what are happening, and what measures you have to deal with it, and have more courage to face disease. Learn more about the treatment guidelines for your own disease, be clear about what medicines you can use, and what medicines your doctor gives you. Understand the side effects of these medicines in the plan you want to use in advance, so that you can prevent them in advance.
【4】After treatment, it takes a long time to heal your psychology. Many people will never get out of the shadow of cancer and are always afraid of cancer. It is difficult to accept reality and then face it well. When can we sit down and talk to Tumor, basically half of the fight against cancer will be successful.
Advice for young people
3. If you have time, spend more time with your family. Only your family will be your safe haven at any time.
4. If a person loses his health, all happiness will leave you.
We look forward to the day when "can't sleep in the middle of the night" completely defeating cancer as soon as possible, and we also look forward to more patients who can sprint towards healing like him!
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