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According to the “Daily Mail” report on the 26th, an eight-week-old baby in Brisbane, Australia was diagnosed with a rare "butterfly disease", which may only have a few months of life.
Lackland was born in April 2020 in Capodur, 50 kilometers north of Brisbane, but shortly after his birth, his mother Blas found out that Lackland and other children had some problems. same.
"We discovered his condition shortly after he was born because we noticed that he has very little skin on one of his feet." Blass said.
After that, Blas sent the child to the local small clinic for treatment, but found that when the doctor put a bandage on the child, an injection or even wearing an oxygen mask would make him uncomfortable and hurt his skin, Blas Si realized that things might not be that simple.
Lachlan was later transferred to a hospital in Brisbane, where doctors quickly diagnosed him as having epidermolysis blisters.
The skin of patients with this disease is very fragile, just like the wings of a butterfly. A little rubbing will cause blisters or even break the skin, and even unable to live a normal life, like the friction of clothes or Bathing can be painful for the patient.
So far, there is no medicine to treat this disease. Many patients can only live with this pain for their entire lives, and most of them will not live to 35 years old.
After learning that the child was diagnosed with this rare and terminal illness, Ms. Blass said: "We are very sad and painful to learn that our son will suffer from this disease for life.
" Lachlan is also very painful. We just have to touch his skin and he feels very uncomfortable. There is really no way when we take a bath. We can only inject him with morphine. "
Because Lachlan is different from ordinary children and requires special care, the trusteeship agency no longer accepts him. The Blass have to quit their jobs and take care of Lachlan.
Blass is also at a loss as to what should be done in the future. The doctor said that Lachlan may only be a few months away. I only hope that we can accompany him as much as possible, even if he does not know what his future will be. .
currently, in order to reduce the financial burden, the couple's family to help them launch a fundraising campaign has raised a $ 6483 (about 30,000 yuan) in donations .
author: Xia Yan
Responsible editor: Chinese girl
