Blood breaks through blood vessels and flows into the brain stem. The brain stem is between the brain and the spinal cord and is the center that transmits brain signals to the limbs. Cerebral hemorrhage is like a flood, collapses the "road" connecting consciousness and behavior.

Blood breaks through blood vessels and flows into the brain stem. The brain stem is between the brain and the spinal cord and is the center that transmits brain signals to the limbs. Cerebral hemorrhage is like a flood, collapses the "road" connecting consciousness and behavior.

In 2013, such a "flood" broke out in the head of the female doctor Wang Lei. She was 31 years old that year.

Before this, Wang Lei obtained his doctorate degree and joined , the Second Affiliated Hospital of Nanchang University, and his life was smooth. After that, her face was paralyzed and she lost control of most of her limbs. What survived was the thinking brain, the flexible right finger, and the fetus in her belly.

htmlNow 2008, 39-year-old Wang Lei is trapped in a wheelchair and cannot be a doctor. But for the rest of her life, in the corner of the Internet, she is rebuilding herself bit by bit by bit.

Accompanied by the slow striking, Wang Lei used his right finger to build an elderly disease consultation forum. She has multiple accounts in the forum, some called "Dr. Wang", and some called "Dr. Lei". She used these accounts to reply to netizens' inquiries, as if she was still "consulting".

In other free time, she typed out 200,000 words of romance novel , but after posting it online, there were few readers. "It's a failure." She teased, her voice coming out of her nose first. Because half of the tongue could not be controlled, Wang Lei's pronunciation was very unclear. After finishing her words slowly, she pursed her lips and smiled. The right eye without vision was blocked with frosted glass lenses, the left eye was narrowed and the eyebrows were stretched out.

In this quiet room, there were rare bright moments.

On the afternoon of July 17, Wang Lei was in front of the computer, and the computer screen was the home page of the forum she founded. Photo by Yuan Suwen, reporter of Beijing News,

Online "medical"

Mouse and keyboard are Wang Lei's new "limbs".

Wang Lei was sitting in a wheelchair with his head tilted forward, and the black case on the table blocked his side face. Wang Lei's father picked up the mouse and mouse pad and placed it on the thigh where her fingers were resting after her right arm was lowered. Ten centimeters ahead is the keyboard. Wang Lei rolled the pulley with his fingers, called out a 300% magnifying glass, and then moved his finger to the keyboard.

screen is the "Little 6 Forum" (60old.cn) she created, "The original column of this site - Geriatric Disease Zone" - the top of the page is introduced.

Wang Lei logged into the administrator account. In just half a day, dozens of new member applications were added to the backend. In the application reasons, someone wrote: "My father had cerebral infarction , I will learn from you for advice." Some people wrote: "I am also a doctor. After reading your report, I am very moved and want to help you with something."

This forum has been established for five years and has a total of more than 3,000 members. However, there have been hundreds of new applications every day recently, and the traffic has reached its peak. Wang Lei completed his new application in just a few seconds and checked it all. In her opinion, the influx of new applications may be related to the recent media reports on her.

The label of "female doctor" and "pregnant woman" is written. Wang Lei's experience has been frequently reported since he got sick 8 years ago. At first, people paid attention to the children in her belly. Now that the child is in the third grade and is in good health, the camera has turned to her own medical information website. "Parastic Female Doctor Opens a Forum Online "Job to Doctor" - This is the title used in local media reports in early July.

Wang Lei’s physician license has long expired. When she spoke, the words were held in her mouth and it was difficult to spit them out completely. After Wang Lei got sick, he could not walk, eat by himself, or go to the clinic. "It's impossible to do a test for the patient." All he can do now is clicking the mouse and answering questions from netizens online.

This is her "medical" process. Someone posted a question, "Can I get the COVID-19 vaccine for mild spasm paraplegia in lower limbs?" Wang Lei raised his weak right hand and found out to type on the keyboard. She first searched for taboo signs on the disease control website, pressing the seven letters of "xinguan", which took one minute, and selecting the appropriate words in the input method box, which took another minute. The

forum did not bring any income to Wang Lei. Online consultation is free. Instead, it also pays more than 100 yuan in miscellaneous fees such as domain names every year.

"Someone asked me about medical professional questions, and I would feel that I was walking on thin ice like before, because the doctor had to be responsible when he said something." She said vaguely: "I feel that I am still doing something responsible."

mentioned "responsibility", and Wang Lei was a little excited. She said that she initially held the forum because she saw a lot of medical information on the Internet, but it was not very accurate. "If you don't have a little (medical) foundation, you can't tell which information may be correct and which information may be problematic."

She said she was a party member and studied for a doctorate with the national scholarship . "Even if she is sick, she is basically a medical student. She should do something instead of asking for it."

Wang Lei said that she did not consider the results, just doing it is enough. Talk about medicine reminds her of the past, when she was still healthy and everything was full of hope.

On the afternoon of July 17, Wang Lei was conducting a standing training at home, and the photo of his family was posted on the wall opposite. Photo by Yuan Suwen, reporter of Beijing News

, got the disease he studied

, Wang Lei lives with his parents and son, and his family of four lives in an old community in downtown Nanchang. In the small living room, height lines are drawn on the wall, and a table stand for rehabilitation training is placed in the corner. The glass cabinet is covered with photos, which record the past of the little family, the passage of a baby growing into a little boy, the sweet smile before Wang Lei was sick, and a pair of beautiful people wearing wedding dresses, holding hands and standing by the beach.

The bedroom is not big, the bed is equipped with handrails to lift and lower. The call ring is attached to the head of the bed, and the computer desk is connected to the window ling. Wang Lei was tired of fiddling with the computer, so he looked up and looked out the window.

Through the window, you can see the white building in Nanchang Second Affiliated Courtyard, which is where she once worked. The distance of 1.4 kilometers is now within reach.

Wang Lei, born in 1982, is from Huangshan, Anhui Province. His mother is a village doctor. In 2001, she was admitted to the undergraduate degree of clinical medicine in Xiangya Medical College of Central South University, with a five-year academic schedule. After graduating from undergraduate studies, she gave up the opportunity to be admitted to other majors and was admitted to the five-year doctoral training program of our school, focusing on the Department of Neurology.

"Why should I learn this? Because neurology is the most difficult. The whole body of a person can be replaced, but the head cannot be replaced." Wang Lei said that she was young at that time and thought that difficulty was a challenge, which made her want to overcome it. "Like stroke , cerebral hemorrhage, cerebral infarction, and Parkinson's , all the diseases that I don't understand are in neurology."

As the "general command" of the human body, the brain is extremely complex, and most of it is still an unsolved mystery. Wang Lei mentioned an interesting question he encountered during the postgraduate entrance examination: "Close your eyes and touch the building blocks around you. What methods do you know whether the building blocks are square or round?" Behind the simple touch is the transmission of signals such as temperature and pressure. If the signal pathway is cut off, the person will lose consciousness.

The bleeding near Wang Lei's brain stem blocked the signal pathways of most of her limbs, such as losing consciousness between her legs. She needed to use her vision to determine its existence. As she spoke, she raised her left arm and said, "The left hand can move, but she doesn't feel it. I don't know the shape of a steamed bun, and it's easy to crush it. I don't know how to put it in hot water."

The sympathetic nerve pathway also "stopped" on a large scale. Wang Lei's right eye showed "Horner syndrome", his pupil was shrinking, but his response to light was normal, and his eyeballs were inwardly trapped in , and he had no tears. Except for her right face, right arm and shoulder, she could not sweat anywhere in her body. "Sweat is to relieve heat. If a person does not relieve heat, he will easily be heatstroke." Wang Lei cannot go to places with too high temperatures. There were no tears in her right eye and she could not wash away her eyes, which made her suffer from keratitis and eventually lost her vision.

"I understand myself best." This is a disease that Wang Lei once studied, and she has published more than a dozen related papers. Now, she "empathized" and truly realized the "no feeling", "no strength" and "invisible" that the patient told during the consultation. But this is by no means a blessing. When he was studying for a doctorate in

, Wang Lei had excellent grades and had received a Qiushi scholarship. In 2011, Wang Lei met the paper publication requirements and graduated on schedule, which is rare among classmates of the same class.

Wang Lei and his ex-husband are college classmates. He is from Hunan. He graduated two years ago and only received a master's degree in . Wang Lei chose to find a job in Nanchang because this is the midpoint of their hometown. "Nanchang is classified as the western region, which can be regarded as supporting the development of the western region." She said that after joining the Second Affiliated Hospital of Nanchang University, she first rotated for half a year and then entered the Department of Neurology. "Doctoral students don't need regular training."

put on a white coat, and Wang Lei went to take a photo of his ID. In the photo, she is wearing dark red flat-framed glasses, and her short hair is dyed deep red, and it is curved, making her look capable and lively. She looked at the camera and smiled confidently.

Now, this photo is posted on her disability certificate. She is certified as a physical first-level disability.

artistic photos taken by Wang Lei in the past. Photo provided by the interviewee

"The heartbeat was gone when the disease started"

Tang Zhenyu was Wang Lei's former colleague and now he is the chief physician. In his impression, "Wang Lei has strong clinical ability, good work attitude, and devotes more time to the patients."

There was a media report that Wang Lei was the backbone of neurology at that time, working more than 60 hours a week. By the end of 2012, she became pregnant and was still responsible for inspecting nearly 20 patients every day. She had a severe pregnancy reaction, so she continued to work after vomiting.

Afterwards, Tang Zhenyu remembered that when Wang Lei was busy with work, there were some minor signs, "The eyelids on the left occasionally fall off, and their eyes will become smaller, but they will recover after a while."

In order to take care of his daughter, Wang Lei's mother, Ms. Chen, moved from her hometown to Nanchang. Looking back on the day her daughter fell ill, she could not help but blame herself for not taking good care of herself.

It was December 13, 2012, and Wang Lei was almost four months pregnant. In the evening, she finished her 24-hour shift and returned home. Ms. Chen said that after returning home, her daughter told her that "I vomited today and felt very uncomfortable, as if it was different from before." Her daughter also described to her: "I vomited like a spray, and I had a runny nose."

Ms. Chen recalled that after saying these words, Wang Lei fell in front of her.

"I lost consciousness at that time. The doctor said that when I got sick, my heartbeat was gone." Wang Lei said that his parents later told her that her ex-husband, who was also at home, immediately pressed her and "snatched" her heartbeat back.

Tang Zhenyu, who is on duty, receives this young colleague. According to Tang Zhenyu's recollection, when she was first sent to the hospital, Wang Lei "was paralyzed and had difficulty breathing. We immediately had a CT scan and a ventilator."

At first, she got on the non-invasive ventilator and "intubation from her mouth", but it did not improve after a week. She had to cut the trachea and install the invasive ventilator . Wang Lei pointed to his neck, which contained two relief-like scars on it.

The brain stem bleeding is also a serious condition among patients sent to the neurology department. Wang Lei said that two-thirds of patients with brain stem hemorrhage died immediately or died on the way to the hospital. "I have the brain stem bleeding on both sides, the most serious one, and it is lucky to survive."

"The brain stem is the center of the human body's basic life such as breathing and blood pressure. This place is destroyed. If it cannot be controlled in time, many people will die immediately." Tang Zhenyu said that Wang Lei was in the intensive care unit, wearing a ventilator, and trampled on for nearly three weeks, during which time he overcomes many difficulties, "including infection and continuous fever."

What is even more difficult is that Wang Lei is still pregnant with a child. Because the heartbeat stopped and I was on the ventilator, the children in the abdomen were at risk of hypoxia. The medication used for treatment also increases the risk of sequelae in children. Ms. Chen recalled that when she learned that the child might have sequelae, the relatives were a little hesitant, but she insisted on saving her grandson. "I thought at the time that if I didn't save the child, my daughter would definitely regret it. Even if there was a problem when she was born, I could be responsible to the end," she said.

Everything is still indefinite. Tang Zhenyu said that doctors must first protect adults and then consider whether they can take care of the children. "For the sake of the child, Wang Lei cannot use many medicines, which makes her treatment much more difficult than ordinary people."

A bigger problem quickly appeared.Wang Lei began to have a fever, his body temperature continued to be around 40 degrees Celsius, and the infection was like a shadow. High fever would also affect the development of the fetus.

"This is different from ordinary fever, because the temperature setting point has increased." Wang Lei said that she had not yet recovered her consciousness and could not remember the treatment process. According to her mother, Ms. Chen, her daughter had physically cooled down at the time and slept on the ice board, and had to undergo passive recovery every day. "Always crying, it's very uncomfortable."

Ms. Chen can't help, so she can only cook in different ways. Wang Lei on the hospital bed could not swallow it, so he had to use a tube to connect it from his nostril to his stomach to get nutrition. Every two hours, Ms. Chen used a syringe to give her daughter a meal, and the fetus developed normally.

On April 22, 2013, 4 weeks before the due date, the doctor gave Wang Lei a caesarean section. She gave birth to a baby of six or nine taels. The child cried loudly and was normal in all aspects.

A few days after the birth of the child, Wang Lei's blood pressure increased due to childbirth and blood transfusion, causing another bleeding on the right side of the brain.

On the afternoon of July 17, Wang Lei was pushed from the bedroom to the living room by his father. Photo by Yuan Suwen, reporter of Beijing News

The cause of difficult to find

is like a broken vase, and Wang Lei's consciousness is gradually splicing back. She mentioned that until after childbirth, her consciousness was still incomplete. She could agree to someone calling her name, but she could not think and could not answer the "difficult" question of "100 minus 7".

"I always feel like I'm climbing a mountain. I just climbed to the top of the mountain and before I could catch my breath, or even look down on the small mountains, I fell off the cliff." Over the years, Wang Lei has always been sorry for her. She regretted the doctorate degree she received for ten years, regretted that she had only been a doctor for one year, and also regretted her parents.

In August 2013, Wang Lei's condition stabilized and he began to look for the cause of the disease. Wang Lei said that she vaguely remembers that her cerebral angiography lasted for two hours, while ordinary patients only need to have a 20-minute examination.

As the attending physician at the time, Tang Zhenyu said that he speculated that Wang Lei had arteriovenous malformation, which was a type of cerebrovascular malformation , but during the examination, no lesions were found. "We also looked for experts at Tiantan Hospital for angiography, but no obvious lesion blood vessels were found." He said that this means that Wang Lei could not solve the hidden danger of bleeding through surgery.

"I have unknown cause. Now young people suffer from stroke. Many of them are rare disease ." Wang Lei understands the limited medical treatment. "I guess I will know it after I die after I die. Let's talk about it later."

Ms. Chen was a little unwilling to accept it. When her daughter Wang Lei fell ill, the media paid attention. A lawyer came to help with the lawsuit. "It will definitely win if you say that you can win after suing the hospital." But after Wang Lei recovered his consciousness, he refused. "Cebrain hemorrhage is not necessarily caused by overtime." Wang Lei said that a few months before the onset of the disease, she went rafting with her friends and was exhausted on the journey, but there were no problems.

data shows that cerebrovascular disease has become one of the main causes of death among residents. Taking Beijing as an example, according to the "Health White Paper - 2018 Health and Population Health Status Report" released in 2019, the top three causes of deaths among Beijing residents were heart disease, malignant tumors and cerebrovascular diseases, accounting for 70.9% of all deaths.

study found that compared with the elderly, the condition caused by cerebral hemorrhage is more critical in the heads of young people. According to the "Clinical Analysis of 89 Cases of Cerebral Hemorrhage in Young People" published in the medical journal "The Road to Health", young people have better blood flow during the onset, so when they have cerebral hemorrhage, they are faster and more urgent than those in the elderly.

New Life

The year after the onset of the disease is the golden recovery period for patients with sequelae of cerebral hemorrhage. Wang Lei has to actively train and passive massage every day, and suffer from 20 silver needles. After being discharged from the hospital in 2014, Wang Lei returned to his home where he had been away for nearly two years. She began to use her computer to spend time, watch TV series, type with her trembling fingers, and communicate with people through chat software.

In 2016, Wang Lei divorced, her house and children belong to her, and her ex-husband paid alimony every month. Wang Lei said that after participating in the rescue, his ex-husband basically visited the hospital every day in 2013, and gradually became alienated by 2014."I can only say that I can understand him, but it's another matter to be unforgivable." She didn't want to talk more about the reasons and process of the divorce, as well as that person.

In 2016, Wang Lei tried to establish a geriatric consultation website. She taught herself programming technology and tried to buy domain names. The website needs to be registered, and she asks her relatives to help with it. At first, she only cared about "watering". Later, a lot of harmful information appeared on the forum, and she started member review.

"Building a website is like building a house. I want to buy land, I want to build a house. Once the house is built, I want to decorate it. It is like a piece of land, and it can be opened after it is renovated. I didn't think the forum was useful at the beginning, and my expectations were not very high. So as long as I did it, I felt that I had accomplished something." Wang Lei said this.

This is very similar to her philosophy when she was studying. "I don't think about how many points I must get in the exam. But after reading this book, I am already satisfied. If you do it, as for how much it can be rewarded, that is another matter."

htmlOn July 17, in Nanchang, midsummer, the temperature during the day exceeded 35 degrees Celsius. At home, only Wang Lei’s room is turned on with air conditioning. At noon, Wang Lei's father, who was over 70 years old, was naked and cooking in the kitchen. The old man was very silent and his hair was completely white. At home, Wang Lei's father undertakes most of the physical work, including moving his daughter's body every day, putting her on equipment shoe covers, and assisting with rehabilitation training.

Every morning and afternoon, Wang Lei has to maintain the website in front of the computer for two hours each. The rehabilitation training was fixed after noon. The father carried her out of bed, pushed her to the living room, changed into sports shoes, and then asked her to hold her up and push her around her waist. She took advantage of the opportunity to leave the wheelchair. The moment she stood up, she used all her strength to maintain balance, her thighs kept shaking, and she was about to collapse at any time. Her father held her waist and hurriedly looked for a strap with his other hand until she was firmly fixed on the iron frame.

Wang Lei was tied up and stood upright for two hours, every day.

The child is in the third grade and can get full marks if he doesn’t learn much in mathematics. As summer vacation approaches, Wang Lei's mother sends her grandson to tutoring classes, taekwondo classes and violin classes. Wang Lei was worried about the child's vision. When the child wanted to play with his mobile phone in different ways, she had to speak up to stop him.

For two hours of standing upright, the child will give Wang Lei an Ode to Joy, and will gather around the standing table to play poker with her. "This is really hereditary. I have also played cards and mahjong since I was a child." Wang Lei said, and did not forget to use his finger to confirm the cards in his hand. She asked the child to deal cards and also helped her arrange them. Although the child always loses, he never cheats.

Wang Lei has a small goal recently, which is to lose weight. "I will never lose weight by my parents by my side." She dragged the ending tone and wanted to express helplessness. Weight loss is for the sake of my father. The elderly are peers in the Republic. They work in factories all their lives and are in good health. But after all, he is 72 years old, and Wang Lei is worried that his father will not be able to move her one day.

A few days ago, Wang Lei registered his official account with the name of the forum. She was still fighting for another novel. The previous 200,000-word "stop" failed to discourage her, "the next one will definitely be better."

Beijing News reporter Yuan Suwen Intern Han Meng

Editing Yuan Guoli

Proofreading Wu Xingfa