"Mom, I really want to go to school." When I passed by a kindergarten with a seriously ill son on my back, my son suddenly stretched out his hand and pointed at the kindergarten and said such a sentence, his eyes full of yearning. My nose was sore and I held back my tears. I said "Okay" a few times, but I couldn't help but hate myself again. Everyone blamed me for not being able to give birth to my son successfully during the delivery period, which made him diagnosed with severe illness as soon as he was born. Now the child of the same age as my son has gone to school, but my son is still on the way to seek medical treatment. When will I help my son realize his wish? The picture shows Jia Jia receiving treatment.
I am 36 years old and live in Zhaotong City, Yunnan Province. After having a child, I thought about having another child and that the two children would take care of each other in the future. In 2018, I got pregnant with my second child. During my pregnancy, I kept checking on time and looking forward to the arrival of my child every day. But luck makes people feel bad, but when I was giving birth in the hospital in May 2019, an accident happened. The picture shows mother and Jiajia in the hospital.
When I was halfway through the delivery, I didn’t have any strength in my body. The doctor could only do side incision for me, helping me press my stomach to induce labor, and even using a machine to suck the child’s head without any effect. Finally, at 12 o'clock in the evening, it took a day to give birth to his son Jiajia.
Due to the long delivery time, this experience caused serious trauma to the son, and the son was sent for rescue as soon as he was born. Three days after rescue, the son was diagnosed with 13 severe symptoms including neonatal brain injury, scalp hematoma, , and intracranial hemorrhage. The picture shows Jia Jia receiving treatment.
The son's head was swollen after birth, and there seemed to be a lot of water under the scalp. When his body moved gently, his scalp was shaking. He could only eat 30 ml of breast milk a day, and he would be in danger of life at any time. He didn't even have the conditions for transfer to the hospital for treatment. As long as he stopped oxygen, his son would die and could only stand by his life.
At that time, I was most afraid of receiving a call from the doctor, but I was most eager to receive a call from the doctor. I was afraid that what I heard was the news of losing my son. I hadn't heard my son call me mom, nor could I meet him and hug him. During that time, as long as I woke up, I couldn't help crying, and my heart was full of resentment towards myself. The picture shows my mother feeling sad about Jiajia's condition.
Finally, after 24 days of treatment, the son was finally out of danger and could be discharged from the hospital. But I didn't expect that my son's suffering had just begun. After being discharged from the hospital, my son was unable to speak or walk normally. When his son was 3 years old, he had epilepsy again. I took him to multiple hospitals for examination. Finally, in a hospital in Kunming, my son was diagnosed with cerebral palsy. The doctor said that it is very likely that he would not be able to take care of himself for the rest of his life and needed long-term medication and rehabilitation treatment.
I collapsed, and my eyes were getting dark. I have been waiting for my son for so long, but I didn't expect that because of my reasons, my son suffered from such a serious illness. What makes me even more painful is that since my son's treatment, my family has been in high debt. Due to the high cost of treatment, I can't afford to pay, so I can only take my son out of the hospital and find a way to raise money before doing treatment. The picture shows Jia Jia doing treatment.
In June 2022, I learned that there was a rehabilitation hospital in Zhaotong City that could reduce part of the treatment costs, so I immediately took my son to the hospital and rented a small house to start treatment. My husband chose to work in another province for the sake of his son's treatment costs.
I have to get up to cook at around five o'clock every morning. My son can only walk a few steps, so I have to carry my son on his back all day and only when he is treated can I put it down. After going home after the treatment, in order for my son to have better treatment effects, I will learn from the doctor's methods to help my son with training and massage even if I am tired. Even when I was sick and lost my voice, I didn't dare to get an injection, so I could only take medicine, for fear that I would delay taking care of my son. The picture shows my mother carrying Jia Jia to undergo treatment.
My son always likes to listen to story books and wants to go to school. I told my son that he can only go after he is cured. My son looked at me seriously and said, "Mom, I must treat him well, and this idea seems to have become my son's wish."He should do acupuncture and stretch his body every day. But no matter how painful he is, he will not cry or make a fuss and actively cooperate with the doctor's treatment.
The son is very sensible because he is seriously ill and cannot control his urination and defecation by himself. My son cried guiltily and said to me, "Mom, am I a bad baby? I have caused you trouble." I hugged my son in my arms with heartache: "You will always be a good baby to your mother. It is because of the bad mother that makes you suffer so much. Mom will definitely treat you well and make you go to kindergarten happily." The picture shows Jiajia.
What surprised me was that after a period of treatment, my son's condition has made obvious progress. He has stood for half an hour, walked for three meters, and made great progress in speaking.
However, although my son's condition has improved now, his future path is still far. Although the hospital can waive part of the treatment costs, the remaining part is still difficult for us, an ordinary family. My husband worked hard on the construction site for a month and didn’t even have half of his son’s treatment expenses. He owed countless debts. I really didn’t know what to do to continue on the road to recovery with my son, but as long as there was a glimmer of hope, I would never give up. The picture shows Jiajia.
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